Member
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Join Date: Sep 2011
Posts: 246
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Member
Join Date: Sep 2011
Posts: 246
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I'm sorry it turned out as it did. It gives me no joy to find that my suspicions were close to the mark. The place looks like a commercial clinic that has been set up to cash in on delivering expensive treatments for CRPS and that must include plenty of SCS placements given the experience and interests of the people staffing it. The truth is places like these just aren't set up to run or participate in clinical trials - they want to siphon off the commercially viable patients who will make them lots of money. Too many prey on the desperate and those who will pay anything to go and see yet someone else who might give them the new hope that they haven't found so far.
I don't know enough about what you were specifically looking for from this clinic to try and help with any other suggestions or ideas. I don't know which aspect of your CRPS you are hoping to try and find an improvement for. If you are determined you want to be involved in a clinical trial then use the WHO, FDA and NINDS websites to look for trials near you but check the inclusion and exclusion criteria carefully.
I know a knock back and the extinguishing of hope is desperately depressing but at least you are actually in no worse a position physically and medically than you were before you called them. If you can explain specifically what you aspects of your CRPS you would hope to improve perhaps there are other things people could recommend.
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