Thread: New post concussion sufferer
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Old 04-09-2014, 12:02 AM
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Margarite Margarite is offline
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Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
Margarite Margarite is offline
Member
Margarite's Avatar
 
Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
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Sorry to hear you joined this exclusive club, but now that you are here, welcome!
I am 24, and my first concussion was when I was 19, but I had more concussions than you have fingers. The most important rule is DO NOT GET A 2ND CONCUSSION! With every concussion your likelihood of serious long term effects gets worse. I graduated from college only through the grace of God and the help of my close friends, but since that time I have taken 2 years off to just work an easy job and veg at home. I am still dealing with a lot of issues such as extreme light and sound sensitivity and the most recent development is sensitivity to scents (very odd). I have been trying to get the courage up to go back to school for nursing. I want to be a neuro nurse to help people like us. I am scared of putting myself through all the stress and pressure of an accelerated nursing program, but I think that once I graduate I will be very happy that I did. The brain fog is scary, but you learn how to live with it and how to push it to the back of your mind.
You are still on concussion #1 and still within the 3 month time window in which most people recover. So, keep your hopes high, but know that if it goes longer do not despair you aren't alone, and you can learn to live with this, but it is an extremely hard road. My best advice is to find a couple friends or family members who you can spill your guts to. Who you can text or write or call and tell exactly how lousy your day is. My closest friend is a person who also suffers from daily migraines and we each picked our own emoji to express our pain. I text her a couple or a lot of my particular face to express the extent of my pain. Or I'll text her that today the pain isn't that bad, but the nausea is bad. She has pain only on one side of her head and my whole head hurts and on the random days when her whole head hurts she texts that she doesn't know how I cope, but then on the days when only one side of my head hurts I text her that I don't know how she does it.
She is the reason I am able to smile and laugh, and the reason that I am not in an asylum. Her fiancé cannot quite understand her pain, but he understands that I do, and he is happy that we have each other. We aren't sure how we will be as wives or as mothers, but we just take each day at a time and hope that when the time comes we will have the strength for what we have to do.

Sorry, I only meant to write a couple sentences, but I got carried away
Live Long and Prosper!
In Christ,
Margarite
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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