Welcome Phaedra but sorry you have this disease & have need of this group.
It is a WONDERFUL group with lots of advice & support!! When others just
don't "get it" we do! For me sometimes I read & think about everyone here
& post a "thanks" if nothing else. Many times I don't post very well or very long
because it's tedious typing one handed. Just so you know there's also a sub-forum
at the top of rsd/crps just for SCS discussions if that helps. Sorry you're
having such problems!