Renee, I'm sorry that this institute didn't work out for you. It's always horrible to have hopes dashed, but when those hopes are to find some help for something as crazily cruel as CRPS the let-down is enormous. Try not to let it get you down for too long, there's research going on and good people looking at this. Not as many as we might want, but there is progress being made. Slowly.

If nothing else, you have publicly highlighted something that might otherwise have caught more folk out. It's important that crocks like that place are talked about and exposed. You just might have saved someone on this forum from spending a lot of money out for nothing, and even more disappointment than you feel. That's a good thing

I'm hopefully on an IVig trial, not starting for a few months yet though. It's definitely worth trying for I think, although you do have to be careful where you sign up. The world clinical research trial website is very informative, and you can be sure that wherever you go is a valid and professional unit.

Take care of yourself, and as others have said - don't give up. There's always got to be hope

Bram.