I am 72 years old, live in Bangalore. I was "struck" suddenly overnight by GBS. I went to bed as usual, but was paralysed neck down next morning. Sounds very dramatic - but that's how it was!
I was rushed to hospital and within six hours was hooked on for a plasmapheresis session. After a total of 5 sessions in 8 days, I came home for physiotherapy and exercises. After 6 weeks of intensive therapy I was back on my feet and had gained most movements back. In the next 8 weeks I continued to progress quite well and was almost back to my "old self".

But, unfortunately this did not last long. About 7 months after the onslaught of GBS, I started slowly feeling numb in hands and feet and this has now crept upto wrist and knee respectively. In the last two weeks several investigations were done to determine possible cause - none could be found. Lumbar puncture revealed a slightly higher protein level in the Cerebrospinal Fluid. Other than this no malignancy of any kind was found in Colon, GI Tract, Spleen, Liver, Kidney, Prostate, etc.

The conclusion now is CIDP and I am now on Steroids - Prednisone 40 mg per day. I have to go for a review after 3 weeks. Hope this situation gets better and that I am taken off steroids ASAP!!

I would be grateful for feedback from other members especially those who have experienced similar trauma. Thanks a bunch