--though I am sorry about what brought you here.

Yes, what you describe definitely sounds like chronic inflammatory demyelinating polyenuropathy, which is often considered the "chronic" form of Guillain Barre syndrome. Usually, a very acute onset such as you describe portends some eventual recovery, though the recovery may be long, be patchy and incomplete, and leave residual effects. There are cases, though, in which the autoimmune attack on the nerves continues after the initial assault and the situation becomes chronic, with remissions and relapses over time (not unlike a peripheral nerve version of multiple sclerosis).

Most of the treatments, as you have experienced, involve immune modulation. The next logical thing for you would likely be intravenous immunoglobulin (IvIg), though it's often hard to get insurance coverage for that.

If you haven't already, feel free to stop in at our peripheral neuropathy forum--lots of expertise over there:

http://neurotalk.psychcentral.com/forum20.html