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Old 08-26-2006, 09:10 PM
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rosebud rosebud is offline
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Join Date: Aug 2006
Location: Great Green Pacific Rainforest
Posts: 488
15 yr Member
rosebud rosebud is offline
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rosebud's Avatar
 
Join Date: Aug 2006
Location: Great Green Pacific Rainforest
Posts: 488
15 yr Member
Default Yes, I think that's a great idea...

We do need a plan B as it is obvious we took heavy losses in the last round. I was connected well enough to locate a few of you during the blackout, so didn't feel as isolated. I was a Girl Guide, and like the Boy Scouts our motto was "Be Prepared" (or was it "We eat Brownies for breakfast"?) Whatever.

I don't think of this group as a collection of factions:ie White rats, Grey rats, yellow rats etc, but rather an eclectic group all with a common goal -to find anything that will help and share until someone finds the crack in the wall and we can all get out of PD prison. The truth is...we don't know what the truth is. (By the way Rick, when will we be able to order our "White Rats" jackets with our name on the sleeve?) But back to the truth: the truth for me is: if I gave up sugar and other questionable eating practices I'd be a whole heck of a lot better off (and you can take that literally). Another truth may be that when they find the next big break through it may not be the answer for all of us, because I don't think we all have exactly the same disorder. Then what? Personally I think Amgen is sitting on a golden egg. It may not be the only golden egg, or even the egg for me, but we do ourselves a diservice by not doing what we can to make our voices heard. I was really pleased to hear that Peggy and Carey will be on the new patient advisory board. That's a step forward.

Well this has been my first good ramble in awhile. I do find value here, and Rick is right, we should keep our shack out back available for emergencies. Now where's the best place to get a good piece of Chedder Cheese?
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