I'm sorry you're having so much muscle pain. It can happen a lot with MG.

The important thing is to take care of the pain as soon as it occurs. Usually you can find a knot/sore spot in a muscle that is in pain. I have found that kneading out the pain with my hands and/or a massager works the best.

If you begin with a heating pad, you can control the heat and amount of time (i.e., the back). That will help to relax the muscles. Then you can use a hand-held massager to dig into the areas that are really bad.

It might help to have a physical therapist evaluate your situation, and to help you know how to take care of it yourself. Sometimes, especially with really bad or hard to reach areas, it's best to go to PT.

I have an old Panasonic massager, that is similar to this first one. It might be noisy but it really needs to be a strong massager to dig into any area! You might need to do this a few times a day in the area. Do not do it too close to the neck, however! Again, that's why seeing PT is a good idea. They can give you some direction, since it will probably be an ongoing issue.

I've had this problem for years, and the only thing that helps is heat (not too much), massage (ultrasound at PT if necessary), rest, and Tylenol. I have gotten to a point where, if I take care of it right away, I can get rid of it within a day or two.

BTW, have you had your electrolytes or vitamin D checked lately? That can cause pain, too.

Good suggestions, Sue!

I hope your pain gets better soon.

Annie


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