Senior Member
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Join Date: May 2012
Location: Canada
Posts: 1,647
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Senior Member
Join Date: May 2012
Location: Canada
Posts: 1,647
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I agree with Sally in that RRMS doesn't always progress to SPMS.
The one thing that seems to hold true with this disease is that each person's experience with it is unique, even though we often share similar symptoms.
I found my way here when my RRMS became SPMS, but like Sally I had RR for around 30 years first. Having the folks on NT to share with really helps me to understand more about how MS affect people differently and it helps me deal with the challenges that the progression has presented over the past 3 years. Even with those challenges, I have a good life and remain independent...so please know that it is not the end of the world if your MS does become progressive.
The best recommendation that I have, is to focus on living your life now and not on what the MS might do in the future.
I'm glad that you are trying the LDN. It has worked to take the edges off the symptoms for me, especially with respect to cognition.
With love, Erika
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