Hopeful, I am thinking and praying for you. I must confess I do not understand all the drug situations, though I fear I soon will. Do all of these drugs have this affect? The reason you are getting off it, is it because it stopped working? Listening to your story about getting off this drug is making me fear starting any drug at all, it sounds worse than the pain of the PN itself.

I am so sorry you are going through this, as if PN is not bad enough but to have to fight the drugs this way when they were supposed to help you is awful.

Consider this the "safe zone" and you are free to say all the things you would never want to say out loud. I tell myself it doesn't count if I don't say it out loud. No judgement from anyone here, only compassion and prayers.