Member
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Join Date: Mar 2014
Location: Western U.S.
Posts: 276
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Member
Join Date: Mar 2014
Location: Western U.S.
Posts: 276
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Beyond frustrated, what is happening
Hello,
I just don't know what is happening and I am frustrated, upset and actually a little scared.
Quick story, had a severe concussion over a year ago, lot's of cognitive problems and even now having problems, thinking is still slow at times, short term memory gone...but late last year I had what the ER doctor thought was 2 seizures, one right in the ER waiting room when I suddenly could not think properly, write my name...my hand went weak...then my left arm started shaking and I started shouting the same thing over and over, felt like a robot, knew it was me but couldn't stop, electric feeling in my arms, felt like a dream but could hear muffled voice, only last about 2 mins.
My Dr was awful, would say referrals are being sent to a neurologist but to this day I still do not have an appt, referrals not being sent, wrongly written, on and on...
I have never experienced what happened late last year, but still losing time, electric feelings in arms sometimes and I feel just "weird" in my head, it passes after a minute or so.
I can be walking in to a store and feel like I'm disorientated and like I'm in some kind of dream, it's scary as I just feel so out of it, something's wrong.
I notice the lights in Walmart bother me, looked up at them the other day and my head felt weird and again I felt disorientated.
I am worried, frustrated and don't know how on earth to get to a neurologist, I have changed Dr's but...the referral she sent through has yet again been sent to the wrong place, they are telling me they cannot accept me as a patient because the Dr is not writing my symptoms down clearly enough.
Honestly I don't think I can explain it any more simply to the Dr but she just looks at me and I feel like I'm trying to tell her what to do....it's a circle.
Does this sound like some kind of seizure going on even though the 2 I had last year (1 at home, 1 in ER) have never happened that badly since then?
Sorry to go on so long but I am frustrated and dread calling the Dr tomorrow.
Thank you for any advice/help. PS I am now on Medicaid, lost job and now don't work.
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