Thanks so much Annie!!!

Yes, I have numbness all over really.. when they did a epidermal nerve biopsy it showed "significant decrease" in my nerve fibers- aka it was a non length dependent small fiber neuropathy... then I Have the droopy eyelids and MG/LEMS symptoms too

but as far as the stomach.. my stomach issues actually preceded my neuro ones.. I was pregnant back to back (nursed both kids).. had a traumatic surgery.. and after that it all went down hill.. i was not intelligent and continued breastfeeding.. when I got home from work one day (after i had lost a TON of weight secondary to my GI issues, I pumped out 18 oz of clear "milk" and realized I am starving my body of nutrients.. and not helping my daughter)! and stopped nursing immediately... but I think I stripped my vitamins with the GI issues plus pregnancy and nursing..

Anyhow,, they think I have crohns now.. as IVIG helps my stomach.. but i have had a major flare this month- becoming quite obvious something serious is going on there.. with my sister having crohns and we have the same sx - they think that's what it is... so i'm getting worked up for that

I do have MTHFR (haha love your comment as what that looks like)! I am homozygous c67tt (which is the "bad" one to have, from what I read).... I am low in zinc, B1 (was undetectable), b6, b12, folate and something else)...

I have started taking methylcolbalmin, as I read that helps neuro issues better as well.. They are planning injections - and I will specifically request mythyl.. I am going on 3 years with alll this, so I don't know that it will "fix" me at this point.. but I am hopeful it will help - I have less fatigue already!

They have not checked those antibodies- though my uncle just told me that he was told years ago he had pernicious anemia and had to take b12 shots - interesting!!

My MRI actually also shows a myelopathy - consistent with b12 deficiency! So we are pretty hopeful that maybe we are starting to figure out some of this whole mess, and connect the dots to everything - it is all making a little sense now!

I feel guilty for abusing my body so badly for those years of pregnancy/nursing and more.. ugh... hind sight...