Google wasn't around (or at least it was, but not in my home or even in my knowledge-sphere when I got Dx'd in 2001 - I think I had heard of it, but it was a world away from me).

Still, there was lots of media-hype about motor neurone disorder at that time, so when I started slurring my words, going numb, losing my vision, pee-ing myself and tripping all over everything I was terrified and thought 'this is it'. I was only thirty-two and had two small children.

My diagnosis ended up being such a relief, although I was convinced, with everything I read and saw (and later Googled - because my computer ignorance didn't last long: I had a physical job back then and had to 'reinvent myself' and do something less demanding) that I was primary progressive.

Time told the story and I re-trained, became a teacher (in my industry, teaching business and retail to adults) - I have done this for ten years, and so far - touch wood, I have not progressed too badly.

Knowledge IS power, but sometimes, it is debilitating - you just need to be careful that you don't make it a 'self-fulfilling prophecy'.

Just my humble thoughts

xx