Quote:
Originally Posted by LillyMS
From what I've researched, LDN and similar to tecfidera is some ways, but is not toxic. Guess time will tell... I'll be getting another MRI in 6 months and if my MRI is still stable then I'll know it's "working".
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Good luck with that!
Quote:
Originally Posted by tkrik
I tend to think its all a crapshoot whether or not one will progress and if the DMDs are really working. No one can really give you a definite answer either. And, lesion load doesn't equate to disability either. It's such an individual thing and each of us is different with the same label - MS.
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Crapshoot, good description.
Quote:
Originally Posted by LillyMS
I am totally screwed. I am only 34 yrs old (very athletic female... run 3 miles every day on my thread mill etc) and should enjoy the days I have left. I got MS in 2002... it is now 2014... even though my MRIs look TERRIBLE I am still doing way better than 99% of others with MS because I feel completely normal as if I didn't even have MS. Unfortunately, I doubt this will last!
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Yep, you're screwed.
We should all be so screwed. I only have a few lesions and can hike in the woods for an hour and barely crawl home.
Quote:
Originally Posted by LillyMS
This is really confusing. I think I just found a contradictive article here:
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For every article/study, there is an equal and opposite article/study.
Quote:
Originally Posted by Erin524
bit of advice...Stop googling. Trying to research MS stuff online can cause a lot of people a ton of stress.
If you're worried about what the MS *might* do to you someday. Try not to. Focus that energy on keeping active instead.
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Lilly, if you start going downhill tomorrow, I suspect you'll blame it on your lesions. Some of us might think to ourselves that you Googled yourself into a tizzy. You seem to be quite focused on something bad that may or may not happen. How about centering on what you can do and control? A lot of us only dream about running, much less 3 miles a day. You have a lot going for you; try thinking about that.
Quote:
Originally Posted by LillyMS
Thanks for all the replies. I'm taking LDN for the first time tonight. I'm eager to see what happens.
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Again, good luck with that! And when I say "luck", I mean
luck.