I just wanted to say hello. I am sorry you are going through all the uncertainty that comes with a hard dX. I can tell you one thing that will help with your neurologist. Bring a journal with you of all you have experienced. Also if you have someone with you in the room, the doctor has a tendency, to listen a bit better, and pay attention. If he responds, and you miss something, the other person can help you. I did this with all my appointments, and found that the doctors I saw, took more time with me, and listened much better. I hope that you can find answers to all the questions you have. Please let me know how you do. ginnie