Sue, I'm so sorry for what you've been thru and I really am not surprised Neurontin is getting sued. Their medicine screwed me up for three months of crazy. Grrrr.

As far as taking my new neuro to the Medical Board. I've actually gone before the board before when a pain clinic dr. ATTACKED me with needles in the back of my skull (he trapped me in my shirt and started jamming the needles in my skull and right by my syrinx in my neck - those could have killed me). The Med. Board did NOTHING to him. Except that there is a write up on his rating about it. I decided to pursue legal action because I wasn't damaged beyond the terror of the moment and I just needed to get away from the whole thing. Counseling helped.

I'm from a medical family and because I have so many diseases and specialists, etc, I can tell the good docs from the bad right away. This doc is a good one. I'm just a difficult case. The things I NEED to do to help some of my diseases can't be done because they cause so much danger where the others are concerned. We knew that starting the new drug (remember I was just diagnosed less than 2 weeks ago) there might be side effects and we agreed we'd deal with them as they came. Because my allergic reaction came on so fast and so big, and I'd only been on the medicine for a week at the time, they wanted me to stop til I could get into the office because the risk of the seizures was the lesser of two evils with the skin rash. Because it's such a quick reaction, they are thinking it could be of the bad, rare kind so it was better to stop. I fought them on it at first, which is why she agreed to give me Vimpat for the weekend to keep seizures at bay (it didn't work, I had a seizure yesterday but wasn't grand mal...I'm beginning to think the problem might be her PA saying anything to get me off the phone - she, I and my husband will be discussing this Wednesday morning). But the rash kept on moving even though I started steroids, used itch creams (I had PUPPPS while pg with my son - it's horrible. You can look it up if you want - horrible rash) so I know the drill with the best ways to minimize itching. If the dr wasn't convinced that this could be the bad rash, I'd still be taking the Keppra and doing the itching protocols.

I'm so frustrated with having to have all these specialists and all this crap going on and this doc will only get so many chances, but I'm going to give her more than one. I know how difficult my situation is...I live it. Trying to be a specialist and work with so many things outside your specialty has to suck, but as long as she takes my calls and gets me in right away, then that's half the battle.