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Old 04-15-2014, 09:13 AM
LillyMS LillyMS is offline
Junior Member
 
Join Date: Mar 2014
Posts: 40
10 yr Member
LillyMS LillyMS is offline
Junior Member
 
Join Date: Mar 2014
Posts: 40
10 yr Member
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I finally took my first does of 1.5mg LDN last night and had NO reaction to it at all, so this was good news.

Since I had no reaction would I be stupid to take 2 pills tonight so that I get 3mg? I'm really uncomfortable taking only 1.5mg as I'm worried it is not doing anything beneficial in such a super teeny dose. I have an appointment this Friday with another MD who knows LDN very well (this MD also used to be a radiologist so that is a huge plus!), but I was wondering if I should up the dose in the interim you think?

Also, I actually have a 3rd new symptom that I didn't mention before. Past 2 weeks I've been getting up to pee like a race horse 5 or 6 times a night! I know MS can affect the bladder. This is yet another disappointing sign Tecfidera was NOT working because I went from being 100% asymptomatic past 7 yrs to getting hit with 3 new recent symptoms almost all at once!

I'm not allowing myself to drive myself crazy anymore with googling things constantly, but am I correct in thinking that tremor most often happens in more advanced MS and is a sign of progression? (I've had MS for approx 12 yrs). Or do tremors also happen in RMMS very early on?

Thanks for all the replies
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"Thanks for this!" says:
Erika (04-15-2014), SallyC (04-15-2014)