I forgot to ask the questions after my long post the other day. From what I have read, it sounds like most people with snf have tingling and numbness, and I do not have either. My biggest issues are pain that is so intense it feels like bones are broken, burning, and temp differences between my left arm and right, and my left leg and right leg. Are there many of you without numbness and tingling that have been diagnosed with snf? I feel like my neuro was just throwing out an initial dx of snf because she didnt know what else to say when i asked her what she thought was wrong. I have my nerve cond test next month, then see the neuro again in July. I really want to know what's going on with me. This has been a very long almost 6 yrs now.

Thank you for any insight anyone may have!!