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rory47 · 04-16-2014, 09:16 PM

Quote:

Originally Posted by St George 2013

I was dx'd with SFN in Sept 2013 after having 6 chemo treatments that ended in March 2013. Having diabetes didn't help either

I had the nerve cond study done and the dr (that is all he does is these tests) smirkingly told me there was nothing wrong. Never mentioned SFN which I didn't know about anyway. Doing my own research and seeing several dr's I asked the foot and ankle dr to do the skin biopsy..which is a very easy test to determine SFN. The test came back positive and I just wanted to go to the dr that did the nerve test and smush the results in his face......and to tell him that he should tell patients about SFN so they will know what other directions they can go in. The nerve cond tests usually don't show SFN.

I do having tingling and numbness and any other symptoms you can have with neuropathy. Everyone if different and can present in different ways. This started in my feet then hands......now also in upper right arm and some days in both legs and both arms.....boy are those the fun days

Not sure any of this info will help but just wanted to chime in (with my words that aren't even words...lol)

Please keep us posted.

Debi from Georgia

Dogwalker and StGeorge2013, thank you for your replies. I really appreciate them. While I realize that everyone presents with different symptoms, I have a few questions that even my Dr can't explain. Before I fell onto my right hand over 5 years ago, Ihad no issues with any pain besides my neck. So then after I fall onto my hand, the pain in my right bicep area and severe lack of movement set in after a week or two. It has not gone away for a moment. Then after neck surgery 2 years ago, I woke to the very same bicep pain in my other arm. Again, the severe pain has not stopped since that day. And the fact that both arms are exactly the same in terms of lack of movement, and the very same pain in the very same places. That's what puzzles me the most. Since I do have alot of burning, I am wondering if I do have neuropathy, but maybe also something else going on along with it that would explain my arms. The only way I can describe how my arms feel is to imagine someone behind you has your arms twisted up behind you, and then about 20 times a day they yank even harder. Asking me to move my arms is like asking someone to bend their finger back to touch their wrist. Its not supposed to happen. That's what both my arms feel like, every day, all day. And since my right leg is starting to sometimes have the same kind of pain as my arms, I am concerned that my leg will end like my arms. I would not be able to walk. As it is, I have pain in my arms even when i do walk, but I couldn't imagine walking on legs with that pain.

So could snf just happen to show up after an injury, and then spread to my other arm after a surgery?
I did have a nerve cond study 18 mo ago, but all was normal. I will be having another son. Again, everything feels normal, besides widespread pain and burning. I realize that I willj ust have to get my dx in good time, but I have been waiting almost 6 years . When i go back to the neuro in July, my next follow up after that would not be until Nov since she is so booked up, and in the meantime I just get worse and worse it seems. Sorry for the rant, but I am worn out in every way. Thanks again for any wisdom!