OH my gosh, Sue! I can't imagine finding out the seizures are Rx resistant. That just SUCKS. I'm glad you were able to find two doctors to stick with you and manage your health.

I long for that. I had that when we lived in Texas, but since moving to Phoenix it's been a nightmare of dr. after dr. My first primary care dr was AWESOME, but then retired to write crime novels. The guy who took over his practice was HORRIBLE and rude to all. So I left and found a new pcp. He seemed amazingly cool. Too many incidents of his greed and over-medications and then asking for hundreds of dollars to write stuff he was supposed to do anyway ended up with Medicare having SEVEN lawsuits against him and he took off with everyone's medical records.

So my pain clinic recommended a (for lack of a better description) chain of "family medicine" doctors. All over the Phx valley. I never got to see a real dr. only the PAs. And they kept under diagnosing me or misdiagnosing outright. Then I started having kidney problems (I've got a history of kidney stones) and when I went in to do a urinalysis the aides gave me a DIRTY STYROFOAM CUP to put my sample into. I told them that was unacceptable and they managed to dig up something else. After that I went into the room and the PA came in I told him what happened and that due to my history he'd have to send that sample off, not just test in the office. HE RAN out the door for a min. then came back and he said he stopped them before they got rid of it. for 6 weeks in a row, I'd call weekly to see what the results were. I found out that the girls threw that sample away, and nobody ever sent anything off. The following week I was rushed to the ER and went from the ER to emergency surgery because I'd had 2 stuck kidney stones for that past MINIMUM of 6 weeks. My kidney took forever to recover.

I called and talked to the mgr of that particular family practice and she got the head dr and they had a big meeting, blah blah blah. Big apologies all around... I said I'd give them one more chance. When I was in the hospital, they used regular hospital tape on me when setting my dressing for me to go home. I'm SEVERELY allergic (and they know that, too) to that and the rash that hits is fast and spreads everywhere. So I went in to the dr that day, and the rash was from belly button down to mid thigh. The PA gave me a cream to put on it. Um....when a rash is that freaking bad steroids are the only way to stop them. As I was sick, tired and just out of it, I filled the script and went home. Talked to my mom (a former RN) and she told me about needed steroids. I gave the cream two days to make a difference. By the time the rash was down to my knees, my husband drove me to the dr. office - no appt at all - and I DEMANDED to be seen at that minute. Frankly, I caused a scene on purpose (no children there or I wouldn't have done that) so that everyone would know what an idiot that PA was. They took me back and gave me two huge steroid shots. One fast acting, one slow. The rash was half gone by the next morning and all the way gone a day later.

I know this was long and drawn out, but finding a dr. here is a nightmare. The good news is that we're moving out of state soon (West coast here we come! - it was supposed to be New Zealand but now we can't because of my medical problems and the need for a support system to help out) and I can just see the specialists I have and will worry about finding a good primary care doc once we land where ever we're going. Then I will find specialists from there. But at least I'll have one central doctor who will have all the info from all the specialists. I'm sick of being my only advocate - my memory is shoddy these days. My husband does what he can, but the poor guy is in management at work and works long hours and then comes home, cooks dinner, etc. He never complains when I need a few days of rest. Mostly because he knows I'm stubborn and have a desperate need for a clean house. LOL

I am rambling here. Day 2 Depakote. Dope-a-kote. So far so good, but it makes me a little....goofy.

I hope you have a great day, Sue!! Know that I will keep you in my prayers...you've been through so much!