Member
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Join Date: Sep 2009
Posts: 286
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Member
Join Date: Sep 2009
Posts: 286
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I worry about that myself Renee. I knew my surgeons schedule, I do NOT believe the surgery she does should be legal, its a disgusting surgery, its not even researched or approved by the NIH. But ever Monday and Wednesday I knew she was causing harm to 4 more people. I hated it! She thankfully moved after some bad press a few months ago, but is now teaching new students, new surgeons how to do this surgery. Which is scary in itself. I have never said this to anybody before. But when I was 4 weeks post op I was sitting in the office because my complications were full force, I was way worse off then I ever was before the surgery, and I had talked to the PA and told her everything and the PA, I remember the look on her face, it wasn't good. She told me my surgeon needed to go back in (my guess is the PA knew what my surgeon had done to me and was trying to get it corrected) and then my surgeon walked in the room and she said she needed me real quick and grabbed me and took me into another patients room, she was a young women, probley at the time just a little older then me in her young 20s and the PA tried to stop my surgeon but it was to late, and the surgeon told me to tell the girl how good the surgery was and how I was doing, and I lied, I said I was doing great and told the girl she was in good hands and the surgery would be just fine. I LIED. I was only 18! She pressured me. I went back into my room and my surgeon followed me back and she asked how I was doing and I told her everything and the PA quickly said I think we need to go back in and do surgery and my surgeon said NO, she said I just needed to keep doing physical therapy. And like you all, all my notes were falsified. But I cant help but think about that girl, I put her in harms way. I honestly didn't know at the time, I didn't know how bad the surgery was, I didn't know how manipulative my surgeon was, I just didn't know, I was naïve and young. Did that girl turn out like me? Is she worse off? I cant help to think. And the insane thing is I didn't really start to research until I was a little after a year post op because my surgeon made me feel so isolated, I felt like it was just me that was having these issues. Until I had my second surgery, the goal was to help even things out, crazy huh? They figured if one side was out of balance because they took heaven knows what all out, that maybe if they did the other side it would help. And after the second surgery and things still continued to get worse that's when I did the research and found SOOO much out, I was sick! I remember being in my exam room again, I saw my surgeon usually every other month (that's how I figured she knew what she did) because what surgeon sees you that much? So there I was sitting in my exam room and I hear my surgeon in the next room and I can hear them, I can hear the women telling her she wasn't getting any better, but worse, and it was like I was hearing it all over again, word for word, my surgeon said the same thing to her as she did to me when I first started out. I was STUNNED! And I felt bad for that women. I wanted to go to her and tell her she wasn't alone, there were more of us. THATS how I knew my surgeon was manipulating me and all the others, that disgusting surgery wasn't for me or the others, it was for HER! For HER research! And she was falsifying all of it! Remember the surgery hasn't been researched or approved, so there's no guidelines, so these surgeons can literally do whatever they want in the surgery without any consequences.
The pain I had from the complications was bad, but at the time I could still at least work pretty decently, half a day at work verses a full day, and with light meds I could still do most of everything with limitations. But it was after I had the second surgery I actually got even more worse and whats odd is that's not my worst side. But it was my first side that kept getting worse and worse and I noticed the changes of my extremities getting hot,cold, color discoloration, and I told my nuero a little more in depth of my pain and what I was experiencing (he actually only saw me for my epilepsy) and that's when he diagnosed me with RSD and then he quit and I had to go see a new nuero and I told him and he actually felt my extremities and could feel the temp changes in them along with the color changes. I called my surgeon up and told her what was going on, and she said "oh no, not from my surgery! Not from me! You must have had that before". That's when I stopped all contact. Because I actually think she was looking into my chart because they are all interconnected with the hospital, I saw multiple surgeons in that hospital and the first visit would go fine, heck sometimes the second visit would go fine, they would say they would start testing etc.. and then I usually could never get to a third visit without them calling me and telling me to not come back because they couldn't help. That's how I knew she was always looking, she was calling them up and telling them not go near me. She had a lot of power there and had all power over the surgeons. Do you know how isolating that makes you feel? Not only did this 1 person ruin my life, she also had full control over it for 6yrs! I finally went to another hospital and I saw a surgeon there and he was sooo nice, it was so refreshing to have a surgeon treat me like a human, and he looked over everything, he was willing to do surgery, but he was honest and said the fact was the damage was already done, I got dealt a bad hand of cards and he could only give a 50/50 chance if that and wasn't sure if it would make me worse or better, when his real surgery without complications like mine has an 85% success rate. I decided not to do the surgery and that was the last time ive seen a Dr, which was 3yrs ago, besides my pcp since she manages my pain. In Sept. I go to PA to Drexel to see Schwartzman's team of drs and that will be the first time I go see an actual dr again for this crap. And im honestly still not sure about going there, the only reason if I do decide to go, is to strictly talk about the treatment that Tessa is doing. Im not doing injections, trial drugs and other crap that's just "temporarily" gonna work.
Last edited by tos8; 04-19-2014 at 06:44 PM.
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