Welcome --- I am so sorry for what you have been and are going through! I can't answer much, but I can say that I don't actually experience pain with my MG. It's more like a heavy, slow response, and sometimes actual weakness. (Like when you rake leaves until you just can't hold the rake anymore....except without the raking part!!)

My eyelids will get heavy and 'fall' down sort of hooding my pupils. The corners of my mouth droop in a rather constant frowny face.

But I can't say there is pain (and I do understand pain like migraines and broken bones and even severe sinus infections).

Others will share their thoughts and experiences and may have more insight and help to offer. I do hope you find the answer(s) soon.