Originally Posted by Snoopy

Hi Charlie2015 and Welcome to NeuroTalk.



I'm not sure what or how you mean by 'really low.'

Lhermittes can cause abnormal sensations (vibrations/buzzing, tingling, electrical shock) when the head is bent down, such as simply looking down or chin to chest. These sensations will last only seconds but can be repeated each time the head is bent at the neck.

When related to MS Lhermittes is caused by a lesion(s) on the cervical spine (neck).

Symptom in MS can be permanent, come and go or resolve completely.

I have had Lhermittes as a permanent symptom for 29 years but the sensations it causes can be minimal to the point I really don't notice it unless I really pay attention when I look down. Other times Lhermittes sensations are more intense and has been known to signal an exacerbation for me.

The frequency of MRIs depends on your Neurologist and if you are using any of the Disease Modifying Drugs(DMDs). I have only had about 5 MRIs in the last 29 years.