Thanks for all your replies I will keep you up to date with what the outcome of each of my meetings with surgeons/anaesthetists are as requested I'm only too happy to share if it can give reassurance to others in a similar boat! :-)
I'm not looking forward to my chest being opened but I don't have the option to run from it.
It was explained very clearly to me as to the reasons for this approach versus any other. Yes it's going to be painful and pretty horrid but I am willing to trust my specialists regarding the necessity of it especially as they have been so amazing thus far and worked at such speed with me.
I am seeing one anaesthetist this month regarding the delivery of my baby in June so it's one step at a time!