Quote:
Originally Posted by murgir
Neridronate only had clinical trials on CRPS 1 types. Trying to get FDA approval now. Everyone who took it has been symptom free x 1 year. Not sure if type 2 will be eligible. At least closer for help for us
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I will hopefully be getting an off label bisphosphonate infusion (three consecutive days for four hours a day) using a protocol used for Paget's patients in the next few weeks. It will not be neridronate since it's not approved for use in this country yet. Hopefully the protocol is similar enough to help. There have been other studies with smaller numbers of participants that have shown good results using other similar bisphoshonates. FDA approval can take a long time. I want to do this asap.
Has anyone else here had bisphosphonate infusions using a US approved drug but off label use for CRPS?
Denise