Hello,

Thank you for the quick reply. I have a fairly comprehensive Blood Work up of 8 pages. I know there is even more that can be checked, but my Neuro felt this was enough. Going to use LizaJanes spreadsheet to push further.

B12 was 430. (Just reread Mrs D's post and ordered supplements to hopefully increase)

Vitaman D was 17. Taking 5k UI D3 daily.

A1C was 5.6. This was after a 1 year of diet modification significantly lowering Carbs and Sugars. I lowered my Triglycerides from 400 to 200 during this time. Previously, they were 770. I had A1C rechecked 3 months later and it was at 5.0.

Sjorgens, Lyme, Celiac all negative. Other Autoimmune tests were negative. Not sure which based on wording in Results.

Metabolic and Liver blood work was normal.

Quick Background on progression. Currently take Gabapentin 300Mg 1/day. Higher doses not tolerated, Lyrica doubled vision, and one other I cannot remember, also had side effects.

Aug 2012, Left Cheek Burning/Electrical Shocks - Dr DX TN.
Aug 2013, Left Groin to Leg, then to Foot. Whole Body Paresthesia
Feb 2014, Right Cheek Shocks (Felt through Gabapentin), Right Arm and Leg have similar issues to Left, but not as bad. Right Foot now mirrors left as pins and needles.
Mar 2014, Started having major issues going from low position to standing, nearly blacking out multiple times.
April 2014, Abdominal Bloating, Stomach Bloating, Heartburn after eating even the smallest amounts.

Currently taking Achipex and Domperidone (Reglan compound alternative), still having major issues. Very familiar with Motility and Acid Reducers impact on food/supplement absorption issues. Bloodwork making sure this was not an issue was normal.

Other symptoms.

2 instances of full body rashes in the last 3 years. Unexplained, written down as unknown allergic reaction.

Shingles 1 year prior to first PN symptoms. Small area under right side of chest. PN symptoms mostly on left side until recently.

I've read about the cases of Shingles causing PN, but I've never seen whole body instances. Is that even possible?

Lot's of vision issues during this time. Shocks around eye sockets leads me to believe this was muscle strain or medication side effects.

You mentioned going to UTSW yourself. Are you familiar with the Dallas area and providers?

I'm trying to find others who have had similar symptoms, but NLD SFN seems to be rarer, with AN issues even rarer. It would help to know what others did to deal with these issues.

Thank You.