Dear Mark from Idaho -- Your reply was very interesting, however you do not mention blackouts. Did you experience any? They seem to occur in the latter part of the day or after physical exertion. I find this very frightening.

Also, emotional outbursts (rage) at inappropriate situations are very troubling.

trying to limit physical activity is very difficult with this child. Everything I read states that rest is vital in the healing process. If he is active is he causing more damage.

I appreciate any feedback that you have for this situation. Worried Grandmother