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Old 04-23-2014, 11:10 AM
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Stacy,

I think she will likely proceed with 'standard' PN testing...labs first (which she's done the very minimal basics), then an EMG and NCS. These would only be helpful if it's large fiber neuropathy...but they are usually done first to rule out conditions involving large fibers.

Then she may/may not consider the skin biopsy. It is very minimally invasive and the only test to really confirm SFN. If this is SFN, then it would narrow the causes and make some treatments available to you. If she offers it, you should consider if you want to confirm/deny SFN.

I agree that she should AT LEAST consider the EM since you have some of the classic symptoms. You will just have to ask her outright why (SPECIFICALLY) she's dismissing it. I would also ask if she has experience with EM. She may not and this may be why she's discounting it. If she gets her panties in a wad over you asking whether she has experience with this, then so be it. You need to know if she's qualified to assess the EM condition. The egos on neurologists are quite large, so they sometimes get offended if you present your own diagnosis, etc. I think you bring up the EM is perfectly appropriate, but she obviously didn't. Sometimes you can get them to consider things IF you present so they think it was THEIR idea

How's the neurontin going? Does it help at all now that you've taken it for several days? What dose did she start at? I'll assume she started low with room to increase slowly to see how you tolerate it.
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hopeful (04-23-2014)