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Old 04-26-2014, 06:40 AM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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I also suspect that there are quite a few Neuros out there that are reluctant to change the label from RRMS to SPMS unless they absolutely have to.

Once you are secondary progressive, the current DMD's are no longer prescribed - and in a country like Australia, are no longer available on the PBS (Pharmaceutical Benefits Scheme which means that eligible users get them for around $35 per month - all Interferons, Tec, Gilenya and Tysabri included).

Even if you find a Neuro that will prescribe them (and I know a few people who would fit the criteria for SPMS - but are still using DMD's) then you would be paying full price.

Insurance companies would probably do all that they can to get out of paying too.

Just a thought.
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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