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Old 04-26-2014, 11:14 AM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Exactly as Kroc says...plus some of the signs and characteristics of CRPS might not show up straight away, and they can change over time. You might have the skin discolouring one year, and not the next. It varies for all of us. I had a lot of skin changes in the first year, but a lot less now, although I still get the redness when the burn is upon me

Doctors have a checklist of possible symptoms, and to diagnose CRPS you must have at least some from several categories - but NOT all. Pain alone can be enough depending on your other factors.

Have a read up on CRPS using a good reliable site like Wikipedia or the UK NHS site. It's interesting, and very useful to be educated about what you might be dealing with BUT I have to say that although we all do it to a certain extent, especially when we may have to wait weeks and months for answers from docs be wary of diagnosing yourself from websites or any other non-professional source. There is a lot more to a diagnosis than symptoms, as docs take your medical history and other factors into account too.

See a specialist doc with experience of CRPS as soon as you can, and get a proper diagnosis. There are a lot of nerve related problems that cause symptoms similar to CRPS, and plenty that cause pain. You may or may not have CRPS, but whatever you do have, you definitely deserve to get it treated properly and to have your pain managed as well as they can.

In the mean time, I would exercise some caution as if you had CRPS, and stay away from ice on your body. Use elevation and NSAIDs (as prescribed) for swelling, as ice is very bad for CRPS, and many of us have had things worsened by ice use in the early days before diagnosis. Equally, ask medics to be careful of the limb you have issues with for now, and to use another limb for BP cuffs, blood draws, etc.

Take care, and good luck. Let us know what happens

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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