Quote:
Originally Posted by v5118lKftfk
Hello,
I have been wondering if there is a danger that actively participating in a health forum over time can actually skew one's perception of how dire the situation could be for a prognosis.
In a nutshell, the majority of the posts are going to be from people who really have it tough or from people who are in a phase when they are really finding it difficult.
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I've been participating on the MS forum for years now.
Many new posters that come to NT for MS are in the beginning stages of the disease or of their diagnosis.
The majority of them are scared and anxious and want answers NOW. Unfortunately, MS is a disease that is diagnosed through the process of elimination. Many other diseases mimic MS and it's important to get the correct diagnosis.
There are several posters on MS that have had the disease for years and can offer invaluable support and information.
Even those of us who have had MS for years still find help and answers to questions especially on the new meds that are coming out now.
It's important to keep your perspective when dealing with chronic and incurable diseases. We try very hard to keep each others spirits up during the trying times.
Some will come to NT and receive the answers they're looking for and leave. Some will keep coming back in order to receive the constant validation and support from others who can understand. This is a peer support group and we all try to help others regardless of the place they're in.
