I have VERY fluctuating blood pressure. It can be as low as 60/40 and will then go as high as 253/184 with an average of around 163/ 108. It can do this in just a matter of minutes. I've just got out of hospital after spending 3 days there for autonomic testing. I had a range of tests done including a tilt table test, blood work, exercise test, meal challenges etc... all of which were designed to see what happens to my blood pressure and pulse.

I was wondering, have you been diagnosed with Postural Orthostatic Tacharcadia Syndrome (POTS)? I was diagnosed with this 3 years ago. I used to faint up to 25 times a day. POTS causes fainting, black outs (or near black outs), dizziness, nausea, lack of concentration, headaches etc. Its really affected my life and my drs are now wondering if there might be something else going on. I know a lot of people with RSD have been diagnosed with POTS also (I have both conditions). It is also common if you are hypermobile, like I am so might be something worth looking into.

I'm yet to get the results of the autonomic tests back but hope they will help improve my quality of life.

I'd also suggest you get a 24 hour Blood Pressure monitor fitted if possible. Its important doctors know whether your blood pressure is high or low or if it fluctuates a lot like mine does.

Hopefully, it will "just" be high blood pressure for you. That is much more easier to control than fluctuating blood pressure. Obviously, pain can affect our BP as well.

Hope things improve and if you want to talk to someone who understands I'm here.

Alison