Originally Posted by Pinksweetpea

Hi to you all,

This is my first post, although I have been reading your site for months and I am finding it both interesting and helpful. I have just been diagnosed with "Large Fibre Sensory Polyneuropathy" after nerve conduction tests by the Neurologist.

It hasn't been made clear to me if this condition is "progressive" and I would appreciate your feedback on this. It did start in one foot, then the other and at the moment the numbness has gone up to my knees on both legs, but this has happened over many years. My balance is not very good now and I am unsteady on my feet, which is the main problem.

I have read that my condition can start in your hands and at the moment the dexterity of both hands has worsened in recent months, but the strength seems to still be there - confusing? The Neurologist put me on Lyrica but I had to discontinue after a month because of the foggy brain and other side effects. She said it would "slow progression" but I have found no evidence on the internet that Lyrica will do that - again confusing?

I would really appreciate hearing from anyone with the same diagnosis or symptoms. This site is a real blessing believe me and I want to say THANK YOU for all that you do in supporting confused people like me.

Best Wishes, Pinksweetpea