I haven't worked since July of 2001

For a long time I didn't do anything, but after sitting there in pain for years thinking why me, and is this it. I decided to try and squeeze as much life as possible out of what is left.

It isnt easy. Sometimes I want to give up, and sometimes I can barely think because the pain tries to force me to concentrate on it instead of what I am trying to do. I am not sure how long I can keep going, but I will not let this stuff "make" me quit doing the few things I enjoy doing.

The stuff is spreading on me, and I know there is a day coming when I will not be able to keep going......but it could have took me out already if I had let it. Some may think im talking about doing all this stuff by the way I am talking.......but im only talking about 2 hours a week, and every couple of months one full day of activity.

But in the world of RSD......that is a lot! Looks are deceiving, my friends and family keep telling me to slow down. But if I do, I would be at a dead stop LOL!

I hope it doesn't spread anymore, and you are able to tame the pain some. Glad you found this place, as there are lots of good people that totally understand, and are the best at being supportive!