I do, I do!!! I developed RSD 30 years ago after a fall down the stairs. It was mostly the left foot, but I did start experiencing the pain sensation in all my extremeties (not as bad as the foot) and dystrophy on my left side. I spent 10 years making the rounds of specialists, meds and treatments. i finally found a neuro who put me on Tegretol high dose for 6 months, I could barely function, but when I came off 6 months later the awful vicious cycle of constant pain was gone. My foot was dystrophied. I was never able to ride a bike, run or walk far since, but most days I am pain free and do not walk with a limp. Fast forward to 2 years ago, I woke up after a hysterectomy with a retrocele and cystocele repair and have never been the same since. 9 months later I was diagnosed with MG by SFEMG. It has steadily progressed despite immunsupressants and affects all areas of my body including my breathing. I have since researched it and know they think RSD has an autoimmune component too. MG controls my life and since my mobility is so limited, it does not kick off the RSD too much. The only exception is the summer heat. I need to stay out of the sun and heat and rest and keep my legs up or the MG and RSD will both exaccerbate. I also have autoimmune hypothyroid and another autoimmune thing going on which no one has put a name on that include skin rashes, anemia, muscle, joint and nerve pain as well as severe diarrhea. Not so much fun right now. I am on 20mg prednisone, 2000 cellcept and around 720 of mestinon a day. I work full time while working partially from home, taking a lot of sick days and the occasion disability leave.

Sorry you are going through this too. Let me know if I can help.

kathie