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Old 05-01-2014, 05:14 PM
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TXBatman TXBatman is offline
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Join Date: May 2008
Location: Houston, TX
Posts: 702
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TXBatman TXBatman is offline
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TXBatman's Avatar
 
Join Date: May 2008
Location: Houston, TX
Posts: 702
15 yr Member
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First of all, Welcome! As Erika said, folks with MS can get ON, but ON doesn't always mean you have MS.

I would suggest that you google and read the McDonald Diagnostic Criteria for MS. There are very specific requirements for diagnosing MS, including a certain number or type of lesions, certain types of clinical symptoms, and the separation of lesions and or episodes of symptoms over time. Make sure that you really understood what the neurologist was saying when she said "there wasn't any MS". There isn't a specific test for MS like there is for a virus or cancer or things like that. So it is possible that she was talking about not having evidence to support an MS diagnosis and you misunderstood.

In my situation, my neurologist told me that I didn't have enough lesions in the right places or the right symptoms to call what I had MS. For over two years, I thought she meant that what she saw in my MRI and my symptoms didn't look like MS. What she actually meant was that it did look very much like MS to her, but that I didn't have enough lesions or symptoms separated by enough time to meet the McDonald Criteria and give me a formal diagnosis of MS. When more lesions showed up after 2 years, she finally had enough evidence to meet the criteria and gave me the MS diagnosis that I was not expecting at all.
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"Thanks for this!" says:
ANNagain (05-05-2014), Erika (05-01-2014), happycowsfromwyo (05-15-2014), Mariel (05-13-2014), NurseNancy (05-05-2014), SallyC (05-01-2014)