Thanks again for the info Kathie!!! That is very interesting about the pelvic floor. If it does turn out that I have MG, I will certainly tell my urogynocologist right away!!

I also have constant tinnitus...it is awful and annoying! I do have muscle weakness, but always thought it was RSD. Like we would go to out to run a couple errands and after the first store, I am exhausted and done, can't make it to the next store. I do have a walker (one with wheels and a seat), that helps me out. I do get easily fatigued! I kinda pushed the issue with my PCP because of my right eye drooping so much. I took pictures on my iphone and showed her, she finally got that it was a problem! She did the blood test for antibodies and it was negative, but after seeing the pictures she wanted to pursue it further. The ophthalmologist and the neuro ophthalmologist both told me that the blood test is only 50% accurate. I have a rash all over both arms, it has been there for at least a couple of years, nothing will get rid of it. My neck and face break out in rashes a lot! I do not get fevers though. I have GI issues and lose my balance often. Several years ago, I was diagnosed borderline gastroparesis. I tested negative for celiac, but cannot tolerate any gluten at all!

When the RSD in my face flares up, aside from the pain, it swells and gets flushed. Oh, it also is sensitive to touch. Glad Tegretol helped you, that is one I cannot tolerate. I cannot tolerate prednisone either, well I can take a tiny dose for a couple days and then that is it. One of the things it does is makes my heart feel like it is gonna jump out of my chest. I had to stop getting nerve blocks because of the bad reactions to those steroids. Talking about hair...ugh! Mine is growing and way too much everywhere

I have had many EMG's in the past too, they are truly brutal! I am happy to hear that the SFEMG is not as bad!

Thank you again for talking me through this. I am at a loss right now and you are shedding new light on some things.

Nanc