Hi Eve,

I feel like I could be reading my own story. I too was told I had ME after visiting an MG centre of excellence for tests, I don't have ME I've never had ME.

I also know the feeling of needing to disappear from the forum - you feel like, I havent got MG so I am a fraud if I continue to be here, I am wasting peoples time by being here.

Let me assure without two members of this forum I wouldn't have made it through the last 7 years. I also got a lot of peoples support on here and knew I had some place to vent if I needed it. Don't disappear!

I hate to tell you this but a diagnosis of ME in the UK 99 times out of 100 is a throw away diagnosis and they are telling you (without saying it) the illness is psychological. Most drs in the UK treat ME as a psychological illness not a physical one. So the doctor is in my opinion telling you that because he can't find out what is wrong with you then its your fault as its all in your head.

You may disagree with me but having seen this happen since 1989 in the UK I know that this is what Doctors do. First you will be offered graded exercise and when that makes you worse you will be told you don't want to get well/ you aren't trying hard enough. Then you will be told to take part in CBT the whole purpose of the CBT is to get you to convince yourself you aren't ill and to push yourself beyond your physical limitations. You won't be allowed to talk about your illness during the sessions as that as seen as encouraging your belief that you are ill.

When you don't recover with the CBT you will once again be told its because you didnt try hard enough / don't want to get better. You will then receive the diagnosis of somatiform disorder on top of the ME and all medical treatments and tests will be denied to you because you are "seeking" medical care / attention, so they believe its in your best interests to ignore any new symptoms you may develop.

Think this couldn't happen to you It happened to me although I dodged the official ME diagnosis. The wheels are already in motion, be aware that this is already happening.

I dont mean to frighten you I just want you to be aware that this is now the situation you face. Neurologists in the UK seem to like diagnosing patients with ME when they can't figure out what's wrong with them.

Rach