Happy to help. You are also shedding light on what all my DRs thought was my other autoimmune issue, which is looking more like systemic RSD ( now thought autoimmune too).

I could not tolerate the nerve blocks either, but do fairly well with prednisone pills. It is a quick fix when my MG gets bad.

I am double seronegative MG, that means ACHR and Musk antibody negative. But there are a lot of newly discovered antibodies that are associated with MG, like LRP4, rapsyn, titin, actnin, ryanodine, striational, VCkc, and VGCC for LEMS. Don't think because they tested 2 antibodies, that you don't have MG . There are not any commercial test for them yet, except if you go to a large research hospital like Mayo, and John Hopkins. My SFEMG was very abnormal so none of my neuros have any doubt about MG. I also respond well to Mestinon. Before Mestinon in the morning, I have no bladder control, and my right side of the face is so droppy, almost stroke-like. 20 minutes after taking Mestinon, my smile is back and I am much more functional for 3-4 hours. I time all my activities around my mestinon. If you do not find a good treatment plan with your local neuro, go to a large teaching hospital. Most neuros have never seen MG. Be careful with the breathing issue. Ask your primary for a pulmonary evaluation. I use a BIPAP at night. If the breathing get really bad, get to the ER ASAP and let them know they suspect MG. There are a list of meds that MGers should not take that you should carry with you. There is a lot of useful info on the MG of America website and MDA. MGers are included under the MDA umbrella.

Keep me updated with your progress.
kathie