Nanc (and Kathie), I don't have RSD/CRPS. It must be very difficult to live with.
I have heard that some people are having relief from biofeedback.
http://www.mayoclinic.org/diseases-c...t/con-20022844
Nanc, Some of your symptoms sound like lupus. Have you been seen by a rheumatologist or been tested for that?
There's a level of inflammation with RSD, too.
Anything that adversely affects the nerves (central or peripheral) has the potential to affect MG. It's not as if you can disconnect one system in the body from any other.
Have either of you tried adjunct therapies such as acupuncture? Revamp of your diets? Have you spoken to any Eastern medicine practitioners?
http://www.rsds.org/pdfsall/acm-2010.pdf
This is a short video, but one thing they briefly touch on is staying away from things that increase any nerve/RNS sensitivity, such as caffeine. The doctor on the show is Joshua Prager, MD from UCLA.
http://www.youtube.com/watch?v=kkUVGKUAc8w
I think when you have something like RSD, you really need to pull out all of the tools possible. Certainly do not give up hope!
Also, have you been fully assessed for oxygen saturation at night? A BiPap can help but you really need to know if your oxygen is dropping at night. A pulmonologist can do an overnight oximetry (done at home).
Since you're gluten sensitive (or possibly have CD since they dropped the Reticulin antibody test!), have you been tested for any deficiencies? Iron, calcium, B12, D, zinc, etc.?
What questions do you have about MG? Or do you want to wait until you know you have it? If you do have MG, try not to let your body get hot, since that will make MG worse. Extremes of cold can do it, too. If you can't breathe well, swallow, or move well, you should go to the ER.
I think it's important not to chalk up any new symptoms to the RSD. As so many of us know, you can have multiple problems at one time!
It's the hormone changes during and after pregnancy that can affect the "neuro-endocrine" system, as they now like to call it.
This is a very complex issue, so I hope you both have good doctors helping you. It sounds like you do.
Annie