Nanc, Boy, do I have questions!

First, you do NOT have to have B12 injections. You can take sublingual methylcobalamin daily, along with folic acid. HOWEVER, if your doctors have not tested you for the MTHFR mutation, they should. If you have it, depending upon if you have one or two copies and what gene, that will depend upon what you supplement with. It's a common mutation, and can affect what type of B12 you can absorb/use.

Are the B12 shots you're being given cyanocobalamin? If so, and you have the MTHFR, you might not be getting any B12 to your tissues right now!

Lupus waxes and wanes, as do the blood tests. FYI. Did a rheumatologist test you? Do you have copies of your labs?

You should find a dermatologist at a University. Make an appt. and discuss the rash. Develop a rash and get a biopsy. There is a lot they can tell by doing that! And they might want to do an immunofluorescent test to see if it is subcutaneous lupus. AND they might want to rerun the lupus tests. SCLE is not as easy to diagnose, that's why you need a dermatologist. Did they do the Anti-Ro antibody test?

Do you mean to say that you have a gynecologist who is also a urologist? They're two completely different specialties. I hope you don't have a gyno acting like a uro!! Not ethical.

Have you been evaluated by an endocrinologist? A low potassium would prompt me to see one. Or do you know why it's low?

Acupuncture is not the same situation as an injectable needle. At least research it. It might sound counterintuitive, but it helps to realign the abnormal nerve reaction.

I cannot stress enough that you need to have the MTHFR test. Have they tested your homocysteine or methylmalonic acid? Either or both can be increased if B12 is not making it to your tissues.

And since you are 47, you might be running low on stomach acid. It is thought that many allergies occur due to undigested food/proteins. The body doesn't recognize the proteins that aren't broken down and might see them as invaders. I haven't had any more since figuring out that I had no stomach acid for along time (I'm 55).

Undigested food basically rots in the large intestine, creating inflammation, etc. and can lead to a leaky gut, causing even more immune problems.

I suspect why, but why a low oxalate diet? Did they give a specific reason? Have you gotten kidney stones?

Sorry for the onslaught, but doctoring is about how you think about what's going on, and questions are very helpful.

I really hope you get more answers soon!

Annie