Hi, perrym. Welcome!

Steroids can indeed make someone with MG worse before they get better. How long it takes before things get better is different in everyone.

Do you have any other conditions that might affect your overall health, or other drugs you're taking?

Don't play around with the dose, if you keep taking it. Taking Pred basically "turns off" your adrenal glands. Any decrease in the dose can cause symptoms of adrenal insufficiency, which can be life-threatening.

Pred is not an easy drug to take. Most MG experts don't like to use it on a long-term basis due to the side effects. It can cause diabetes, which can be very hard to undo. What they often use it for is when a patient is having an MG crisis. Then they use Solu-Medrol (IV) and then follow up with a course of oral steroids, tapering down to nothing.

Did your doctor talk to you about taking calcium and vitamin D while on Pred? What about flax, fish, or krill oil? Did they give you any direction?

You need to decide if Pred is the right drug for you or not. It is devilishly difficult to get off of.

I think you might want to discuss this with both your primary care physician AND your neurologist.

Take care,
Annie