Thread: Some interesting information
View Single Post
Old 05-05-2014, 03:42 AM
rach73 rach73 is offline
Member
  
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default
Hi Annie,

Thank you for your lovely comments.

I had a lady contact me yesterday through my wordpress version of my blog
http://www.themyastheniakid.com she lives in Australia and one of her children has symptoms that are very similar to mine. Apart from the fact her son was born with ptosis. I have left a comment saying it sounded it sounded like a type of CMS ( I would never have known about CMS with out you!) and gave her the link to this forum.

I really hope she joins up and can get some help with trying to find the answers for her son.

Thanks again for such kind words about my blog.

Rachx
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
.

.


Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
rach73 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (05-05-2014)