Thread: Don't judge me
View Single Post
Old 05-05-2014, 08:49 AM
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Quote:
Originally Posted by Allanira View Post
Malingerer, drug seeker, addict, so many names, so much pain. I feel them in the depths of my soul. The pain of my body matches that of my soul at being called these names. I hurt. I feel, seek help yet help only hurts. I'm called an attention seeker, drug addict yet all I want is to understand why I hurt. My soul hurts from not being believed. My body hurts from the inside out. I sit in my home that has now become a prison watching my children grow. I hear about their accomplishments, and how much fun they had. I wish and cry in private at what I can't see in person. I don't go to their games or to meet and greets in fear of someone touching me and causing more pain. I don't go and swim with yhem because the cold water hurts. So I sit and watch them grow, I watch them leave and not come back. I wonder why then realize they never knew. They never knew why I didn't go to their school, they never knew why I didn't go to their games. Because I didn't educate them. So I sit, I worry, then I'm gone. My pain finally winning. I placed a rope around my neck and fell. I don't have pain now. I don't have anything. The words of others can no longer hurt me. They can no longer play over and over in my head to beat me down.

This is the way this disorder beats us. This is why this disorder is called a suicide disease. We aren't people to most Dr's. We are a number. We are drug seekers, malingerers, fakers. They don't believe us. We need mental help not meds. Shakespeare said "What is in a name? By any other name a rose would smell as sweet." By any other name I'm still a human. I would love to not be in constant pain. Before people judge me or anyone else walk a mile in our shoes. There are times I expect if I look at my leg I will only see bone because it feels like someone poured acid on it then lit a thousand blowtorches all over my leg. I'm one of the lucky ones that it hasn't spread beyond my leg. I hope and pray they will find a cure for this disorder so no one has to go to the point of suicide again.
Allinara,

It sounds like you are hurting deeply right now on every level .. I am so sorry! Please try to ignore those that don't understand!! Please try not to beat yourself up for what you may miss out on while your children our outside the home and focus on the joys and bond you can create with them at home and within your limitations as these moments in time will be even more memorable to them than any school or social function could ever be.

Are you attending Cognitive Behavioral Therapy (CBT) in addition to a Pain Management provider? This type of therapy can be really beneficial especially for the mental and emotional aspects of this disease. They will often incorporate family and friends into the therapy to help those who are in your 'circle' better understand the affects of this disease and help them learn/cope with you. Just a thought..

sending you a warm iHug,
Tessa
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (05-06-2014), birchlake (05-05-2014), PamelaJune (05-06-2014)