I'm tired of hearing nothing but bitterness from people that have this disorder. Yes we hurt. Yes it does go to our souls and the more bitterness we have the worse we feel. The more we start tearing at our emotional and mental supports. I'm lucky. My emotional and mental supports are firm in my family and friends. My 2 boys keep me going even on my worst days. If I don't take care of my babies there isn't any one else right now to do it. I would have to call my in laws or friends to come help. My husband is in Korea until March next year. Yes I get depressed at times. If I can't stand and do dishes for longer than 10 minutes or mop the kitchen floor I get depressed. These are things I could do all day in and out every day. Now I can't get out n the kitchen floor and do a deep scrub. I can't stand there and scrub my counters or stove. I can do it for 5 minutes then I'm done for a while. It takes me a few days to get 1 sink full of dishes washed. I was amazed I got those trees planted yesterday. Today I'm paying for it but I would gladly do it again, and will do it again. I am taking my life back even if it's only a little. Today I get to take my youngest to his PT session, and get my lidoderm patches. I still challenge everyone to go do 1 thing they used to do. If that means just watering 1 plant, walk your dog even just down the driveway, or go sit on the porch do it. We need to start taking our lives back. Remember we all hurt, we all fear the possibility of something setting off a flare, or spread. We need to STOP living in fear. The more we hold up in the house the more we fear the unknown. The world becomes the unknown. We need to step out into the sun. We need to feel it and enjoy it. Stop being scared and trust your judgments on what you can do. Don't let this define us. Let's start enjoying life again. Go feel the sun and see the flowers as we were meant to.