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Old 05-07-2014, 01:29 PM
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eevo61 eevo61 is offline
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eevo61 eevo61 is offline
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Join Date: Aug 2013
Location: California
Posts: 389
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Quote:
Originally Posted by KimA View Post
Hi peeps,

Sorry I haven't been around much lately. I thought I would give you a wee update to explain why. I apologise if I am repeating anything I already posted.

I previously mentioned that I have been having migraines every day. I have been to my GP a few times and they (I saw 2 different ones) suggested various things.

First, I tried sumatriptan. It didn't help. I phoned the doctor and he suggested a few days of ibuprofen at the maximum OTC dosage. Those of you who have migraines will not be surprised to learn that did not work at all. I knew it wouldn't help but I gave it a go.

I saw the doctor again and he gave me beta blockers (propanolol). Now, that did help to reduce the severity of the migraines but it didn't stop them.

I went back and saw a different GP in the practice. She suggested that a good night's sleep might help break the cycle. (Does anyone remember what sleep is?) She suggested sleeping pills. I had never taken sleeping pills before and honestly hated the idea. But migraines really suck so I agreed to try it. The first night I took one sleeping pill and it turned out that my pain was stronger than one pill, so I woke up through the night. The next night I took two (as instructed). As far as I can remember, I did sleep through the night. Wahey! It wasn't like a normal night of sleep though. I didn't wake up feeling rested and refreshed. I woke up tired and groggy. I suppose that may be normal with sleeping pills. I don't plan to take them again though.

The next day I had...yes...another migraine. It was a fairly painful one too. I have had a migraine every day since 20 March and it is getting very old. I get migraines with aura for bonus fun.

On my last GP visit, the doctor gave me a prescription for pizotifen (pizotyline in the US, I think). This is taken daily to prevent migraines. I used to take it several years ago and found it helpful. It caused extreme drowsiness at first (my lost weekend) but I was able to adjust to it well. So, yesterday I started taking that again. Fingers crossed.

In between my trips to the GP, I also saw a pain specialist. He gave me Cymbalta for the NP pain. I am currently trying to go from 30mg (no problem) to 60mg (horrible). So, with the Cymbalta, starting the pizotifen again and the migraines, I am super groggy.

I am not looking forward to going back to work and having people ask me what I did on my holiday. Now, I work with lovely, intelligent people; they really are terrific. But I think to anyone without a chronic illness the true story of what I am doing on holiday will sound like 'I spent my holiday off my face on prescription drugs'. Not cool, dude, not cool. Honestly, I think I underestimate them. The people are work with are genuinely fantastic. But still, I think I'll opt for something vague.

KimA
Hi Kim ,I used to have migraine headaches before rsd than after the symphatetic lumbar blocks everything got worst but the one med always worked for me even though the injection hurts as hell is toridol injections,there are no pills only subcutaneous form,make sure to ask or talk to your dr about,is also recommended In buttock area,I still got it sometimes lately because when I'm not able to sleep migraines are often there the next day.
It's hurts a lot,so the first couple times after the rsd diagnosis i was thinking on not getting it because of the pain but pills don't work in any sense for me,so obviously my next option without doubt was toridol injection,which I tried before also in combination with zofran for nauseas, the effects last a while,maybe the first couple times you might need few but after pain gets control ,you get to the point where you might need maybe 3-4 injections through the whole year,the pain don't last that long just to make that clear,hurts a while during the application,hope that is available in London and hope that help you too,good luck and also try music to relax your senses,Tibetan singing bowls are nice,just imagine the water sound softly running and the bowls gentle sound very relaxing,well hope that work ,best wishes from Jesika .
Ps I rather had that injection that is a pain in the butt literally than this ,sorry have to added,good luck again.
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Last edited by eevo61; 05-07-2014 at 01:48 PM. Reason: Added caracters and corrected England for London same country but different place,sorry!
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