Originally Posted by Nebulous

Hi all,

I experience flare ups triggered by exertion, stress or lack of sleep.

Flare ups consist of ~3 days of burning arms and legs or what can be described as an excruciating 'acid under the skin' feeling. This is followed by 2 days of very tender muscles in my arms and legs presumably as a result of the nerves being irritated or irritating my muscles. I also experience varying degrees of fatigue during my flare ups.

I have no numbness or discoloration or swelling etc... Only other remarkable thing I've noticed
is that recently when I'm in the acute 'burning' phase I get lightheaded when I stand up and my legs will shake or spasm on standing.

When I'm not flared up I have no symptoms. Is that strange?

I've had these flare up for the last 6 years and I guess I'd just like to find one other person in the world that experiences the same thing. Just one damn person lol. Does anyone have any insights or experience similar flare ups?

The best I've come up with is that this is a small fiber sensory neuropathy but I'll have to confirm with my next neuro.

Thx