From Sally - only five (5!!) years ago, but still a good question:

"That's my question....What reasons did your MS Neuro give you, for a DX of PPMS? Do you feel like you are constantly progressing in disease and disability? Do you reach a plateau, when you stop progressing, for a time?"
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My first neuro showed me as RR. After 8 years of CRABs, 3 rounds of Novantrone and several years of continuous-with-no-remissions-(ever)-debilitating progression, plus a consult from an MS Specialist in Birmingham, finally!

Lucky me, I'm PP.

It's been almost 20 years with PPMS. I'm now at a depressingly high number on the old Kurtske EDSS. Although I'm still at home with a part-time HHA, my next move will be to a nursing home, probably within two years. Hubby and I have discussed it.

Karen