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Old 05-08-2014, 09:35 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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nope! it's really just symptomatic treatment - so when I was inpatient I did Toradol IV (it was GREAT at relieving the pain), and tylenol for the fever.... and lots of fluids by mouth (and if inpatient - by IV too).. I have never done steriods for it, not even when my temp was 103 something (they did an LP on me a few days into the IVIG loading dose) and my CSF showed significant meningitis... otherwise, I didn't want to tell them about it, as I was more concerned to find out if IVIG was going to help my issues, but the csf told them for me I just took ibuprofen when I had it the other two times... not fun.. but managable.. and worth it! Again, it was just learning my rate threshold...


Good luck!!! How exciting that you may be feeling SOOO much better so soon!!! I think I smiled for 2 weeks straight when IVIG kicked it.. I had been physically unable to smile for months... to be able to breathe again, smile again, hold a crayon with my kids, hold a fork, swallow.... It gave me hope after months of scary times... It's a miracle drug!
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