Hi, Elle. Welcome to the forum!

It's not uncommon for doctors to think of everything BUT MG. It's good that you did some research in an attempt to figure this out.

There are diseases like polymyositis that can case weakness, but it's not fatigable as it is in MG.

Take photos of your face while it's okay, while on Pred. Then take photos when it is worse. Try to keep the same head tilt, lighting, backdrop, etc.

A neuro-ophthalmologist can assess your ptosis and see if it's fatigable (and prove that it is).

Kathie is right about trying to find an MG expert at a University or anywhere else. Some of them are in private practice. If you say where you live (city or state), then someone might be able to refer you to an expert.

How long did the doctor prescribe the Pred for? What dose? Yes, Pred can make MG better. The problem I foresee is that, if you have MG, you can become worse once you go off of it. Your muscles can even be weaker than they were before, so watch for that!

Also, any tests they might want to do, such as the RNS, EMG, or SFEMG, will be affected by Pred, and other MG drugs. You should be off of it well before a test is done, or the test might look normal when it isn't. Don't make changes to the Pred dose/schedule without talking to the prescribing doctor!!!

Are your legs weak? How is your breathing? If you have MG, it normally becomes generalized. It's considered a "head and down" disease, because it usually begins with ptosis/head/neck weakness. Do you have any swallowing issues?

MG can become exponentially worse in the heat. So be careful not to get overheated. Some drugs can make MG worse, too.

Naps are sometimes the first sign that someone has MG. The disease can make you more worn out overall. If your body tells you to nap, then do it. It's the only way to recover strength without drugs.

If you become worse, or can't move well, breathe well, or can't swallow, that's the time for 911. There's something called an MG crisis, where muscles get to the point of potentially being life-threatening. Don't get scared by that! Just be aware that undiagnosed and untreated MGers can be more susceptible to having an MG crisis.

How high was your TSH? Good endos know that most people feel best when their TSH is about 2, or between 1 - 2. It all depends upon the lab's range, too. Many people with MG also have some type of thyroid issue.

You're not being silly! You noticed a change in what your "normal" is, sought out help, and, honestly, didn't get a thorough evaluation. Most doctors, even neurologists, only read a couple of pages on MG in medical school. And we all know how they often pooh-pooh women when they bring up symptoms, or throw drugs at us, as your doctors did.

A muscle relaxer can make MG much worse.

Why do doctors reach for the antidepressant every time a patient has symptoms? Are you depressed? If not, then why do you need a drug for it? And while drugs are often useful, many cases of depression can be managed with coping strategies, talking it over with a psychologist/psychiatrist, etc.

There are other things to be taken into consideration, such as celiac disease, gluten sensitivity, a B12, Vit. D, or other deficiencies, etc. Does anyone else in your family have autoimmune diseases? Are you of Northern European heritage?

Internet doctoring? Did you look at every single thing and though you had it? No. You saw one thing that fit your symptoms. That's being logical. But do keep an open mind, because you have not been completely evaluated yet.

Find a good neurologist/MG expert and get some help. Talk to your primary doctor, because maybe they know a good expert. At least keep them in the loop. I really hope you will find someone to figure this out soon!

Annie